Tāngata Whaikaha Māori Probabilistic Panel Survey Research

The 2013 New Zealand Disability Survey estimated 24% of the total population of Aoteaora New Zealand were disabled. The survey also found Māori and Pacific peoples had higher than average disability rates.

The COVID-19 pandemic exposed health-system barriers for those with disabilities.  Disabled people and tāngata whaikaha Māori have since identified factors such as access to primary care and emergency services and delay seeking healthcare due to fear of contracting COVID-19 in health contexts.

This research project will transform the research team’s successful descriptive study of a nationally representative sample of Tāngata Whaikaha Māori into an ongoing panel survey exploring the determinants of infectious disease resilience and pandemic preparedness for Tāngata Whaikaha Māori.

Pattern TI project v3
Principal Investigator
Tristram Ingham
University of Otago
Public Contact
Kim Thomas
teniwhacomms@otago.ac.nz
Project Timeframe/Status
-
In Process

Whakarāpopoto Rangahau Summary of Research

The 2013 New Zealand Disability Survey estimated 24% of the total population were disabled, with those aged 65 or more years more likely to be disabled (59%) than adults under 65 years (21%) or children under 15 years (11%). (Statistics New Zealand, 2014) The survey also found that Māori and Pacific peoples had higher than average disability rates, after adjusting for age differences.

During 2022 the Ministry of Health and Whaikaha compiled data from the Disability Support Services (DSS) database. Their report showed that DSS recipients aged less than 70 years had four times the risk of hospitalisation due to COVID-19 compared with the rest of the population. This group of people were 13 times more likely to die of or with COVID-19. People receiving DSS in residential services required the highest level of support need compared to the overall New Zealand population. For example, this specific group were 19% more likely to be COVID-19 positive, 8 times more likely to be admitted to hospital with COVID-19, and 47 times more likely to die of or with COVID-19.

Due to lack of disaggregated data by ethnicity and other data constraints, there is limited evidence available regarding the direct impacts of COVID-19 on tāngata whaikaha Māori in Aotearoa, such as infection rates, hospitalisation, mortality, and long COVID.

There is also evidence of disproportionate multi-dimensional social impacts from COVID-19 on disabled people and tāngata whaikaha Māori. These groups were more likely to have felt lonely and further concerns around access to appropriate support services, lack of emotional support, financial strain, unemployment, and a lack of adequate and timely communication to vulnerable groups.

This project will do an in-depth analysis of COVID-19 resilience and pandemic preparedness specifically tailored for the Māori population and specifically tāngata whaikaha Māori. Data will also act as a baseline of pandemic-related health needs and preparedness and enable comparison between pandemic outbreaks – either for COVID-19 or future pandemics caused by other infectious diseases.

Te Hiranga a Rangahau Research Impact

The project will significantly contribute to future pandemic preparedness amongst tāngata whaikaha Māori by establishing infrastructure which enables real time analysis and therefore timely information to react expeditiously to future pandemic requirements.

It will allow for deeper and more meaningful analysis of the needs of the diverse disabled population. For example, those with intellectual disability, those living in rural communities, and turi Māori (Māori deaf) have all been identified as particularly vulnerable to poor health outcomes and likely to have different needs to others in a pandemic.  

In addition, the project will expand the existing body of disability knowledge that has primarily been shaped in Aotearoa without the specific views of Māori with disability and their communities.

To date, government data collection has not adequately explored neither the impacts of COVID-19 nor pandemic preparedness from a Māori worldview. The research team, which is predominantly Māori, has a long history of prioritising te Ao Māori in data collection, analysis and interpretation. This project is an opportunity to collect tāngata whaikaha Māori data by iwi which will enable a more localised and target future pandemic response.

Te Niwha

Kairangahau Research Personnel

Assoc Prof Tristram Ingham
University of Otago, Wellington
Science Leader/Principal Investigator

Whaea Bernadette Jones
University of Otago, Wellington
Leader/Co-Principal Investigator

Assoc Prof Meredith Perry
University of Otago, Wellington
Key Researcher

Dr Paula Toko King
University of Otago, Wellington
Key Researcher

Assoc Prof Barry Milne
University of Auckland
Key Researcher

 

Assoc Prof Andrew Sporle
iNZight Analytics Ltd
Key Researcher

Assoc Prof Lara Greaves
iNZight Analytics Ltd
Key Researcher

Dr Tom Elliot
iNZight Analytics Ltd
Key Researcher

Matua Taki Peeke
Te Ao Mārama Aotearoa Trust
Key Individual